Rachel Nyberg's Website

Welcome Baby Kaden! 
Kaden was born last Thursday and Rachel was right that Kari would have a boy! He was 7lbs 3oz and so cute with beautiful skin and a perfect little nose.
Rachel, Mom, and I visited Kari and Kaden in the hospital today. Rachel was so excited. She was smiling the entire time we were riding in the car and when we got to Kari's room. Rachel was looking at Kaden while Mom was holding him across the room. Rachel smiled when she got to hold him. I wheeled Rachel's chair next to Kari's bed then Rachel was "telling" Kari all about what had been going on while she was gone and was holding on tight to her finger.

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Doing better 
Rachel seems to be feeling better. Much more bright-eyed and she went to therapy today.

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Rachel's feeling a little better but now she's really sneezy and a little congested. We have to really work hard to keep it from settling in her lungs or she could get pneumonia again this year. So far she's doing a great job coughing and we've been giving her extra vest treatments.
Please pray for a quick and speedy recovery. Thanks!

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Flu - updated again 
Kaleigh and Luke came down with the flu this week. Thankfully Rachel hasn't caught it yet. Please pray that she successfully evades it again.
We kept Rachel home from school though so that if she is already infected that she doesn't pass it on to other kids at the school and because of some mix-ups with the new PCA's daycare. Luckily I was home anyway since Luke had the flu and wasn't able to take care of a sick baby on his own.
Kari's last day was Wednesday. :( When we ask Rachel what she thinks Kari is going to have almost from the beginning she's consistently said "Boy". I didn't realize this until I mentioned to Kari that it's what she told Linda, Rachel's night nurse. I'm happy that Rachel's effectively using her yes and no blinking with pretty much everyone. Sometimes she won't do it if she's being stubborn that day.

Update: Now Hudson has the flu. Eeek!

Update again: Man, this thing is catchy. We all got it but it wasn't too bad. We'll keep the kids home from school on Monday and I hope the nurses didn't get it.

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Sorry for lack of updates... again. 
For the last few weeks I've been working some overtime hours and we've been working on hiring new PCA's to cover for Kari while she goes on maternity leave. We've always needed a third PCA so we're working on finding two more PCA's. It's crazy trying to hire people. It's amazing how many people don't show up for interviews.

Rachel's doing well. She still hasn't gotten sick yet this winter. She also hardly throws up at all anymore. It takes a while to notice the lack of something but it just dawned on me the other day. She used to throw up a few times every day... then it settled down to a few times every week, then she used to get urpy at almost every 5pm feeding but now she's doing great and it's only a few times each month!

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Happy New Year! 
Rachel is having a blast playing with her new Christmas toys. She had fun playing board games with Kari. Kari will make her identify the number using her communication board when she spins the wheel to find how many spaces she can go to help Rachel be more involved during the board game. She did really well.
Today Luke was asking Rachel if she knew what love meant. He asked, "Is it when you help take care of each other?"
"Yeah, yeah" she said in her little Rachel vocalizations.
Then she made a vocalization that sounded very much like, "Love ya".

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Merry Christmas! 
Rachel had a very fun, very busy Christmas. She really paid attention to when we showed her the presents and she'd get a little distressed if Kaleigh came over to steal a toy. This year she was able to stay awake for her presents.
My great grandmother got her a musical Tinkerbell snowglobe that has a little fan to blow the snow around inside. There's a switch on the back to make it stay on all the time so I was able to adapt it to work for one of Rachel's switches! Now when she practices with pushing her button, she can watch the snow whoosh around Tinkerbell and hear the song playing. Those kinds of toys are really hard to find now so I was pretty excited that now she has something other than a bubble blower to use her button with.
She received many wonderful presents and got to see lots and lots of family.

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Christmas at School 
Today Santa, a reindeer, and an elf visited Rachel's class! Rachel was really watching Santa Claus and had her best smiles today! She really liked her candy cane that Santa gave her. She also received hair ties and more candy for Christmas from her teacher!

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Sorry I haven't updated in a long time. Life is crazy but now I'm done with school for a month or so and I can catch up with a lot of things that were sitting on the back burner for a while. Like updating! Rachel hasn't gotten sick yet this winter so we're hoping she successfully evades pneumonia this year. We're busy finding someone to be a full time PCA as Kari goes on maternity leave. Rachel continues to love school and have a great time with fun art projects, songs during circle time, and playing with the other kiddos.

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Thursday school 
On Thursday Rachel had made a Christmas tree out of pretty pieces of paper glued onto a green construction paper tree. Luke asked her, "Did you make it for me?"
She blinked, "No".
"Did you make it for mommy?"
"Did you make it for Hudson?"
"Yes", she blinked and she also said "Yeah" verbally as well. Hudson was very proud of his little sister. ;)

Rachel had a great time at school, she loved when they did Christmas music during circle time and got to ring bells. She had huge smiles the entire time.

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Fun Monday 
Rachel had a fun day at school. She got to roll on the therapy ball which she always loves. She also had a blast getting messy with paint and glitter during her art time. I'm almost done with classes for the semester so I'll be better about updating afterwards. Well, until next semester starts!

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Still not a lot for updates 
Rachel is doing great in school. She gets to play with the kids and they have all gotten to know her much better this year. One of the little boys played ball with her and a few of them played Barbies with her later that day. She's doing great in speech therapy too, identifying things that are the same or different. (I think, now I'll have to double check her notebook.)
Rachel has an arm immobilizer that she has to wear on each arm for 30 minutes per day. She wants to pull her arm up and back (with her hands by her shoulders) so this holds her arms down and give a chance for the muscle behind her shoulder to stretch out. But she HATES it. Today Luke taught her how to escape so now she's a mini Houdini! She no longer pulls straight against it but has figured out how to slide her arm out sideways. Then Luke would put her arm back in and she'd get out again. Finally she gave up and made crabby noises at Luke about it. She's so cute!

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Happy Thanksgiving! 

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Not a lot for updates 
Sorry, Rachel's back into her "fall asleep at 3pm and wake up at 2-3am" so I only get to see her at 5 am for a few minutes in the morning. Rachel's been doing great with pushing her button at home. She was just happy happy happy. Then the next day she was bossing Kari around and smiling as she was crabbing at her. It was pretty funny. The other day Kari was letting her taste candy and was able to get Rachel to repeat after her, "More, please".

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Speech and Shopping 
We had another UMD appointment today but Rachel was so twitchy (from the med change?) that she didn't participate until the last 10 minutes of the session. It was only an hour this time and Kari was with too. I was so thankful she did so well last time so that they all knew she could do it, it was just an off day. Then we stopped at my mom's and let Rachel eat lunch. Since we were in town we swung by Miller Dwan and got her baclofen pump turned down. It's now at 35, the highest it was ever at was 160. Then we went shopping at Old Navy and Gymboree and I was able to pick up some great deals on clearance for Rachel. Rachel was a good shopper and she had a nice afternoon out with the girls.

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