2026-04-29T03:23:38Z Sara Copyright 2026, Sara SPHPBLOG
Some brand new great news - last night we just set up Rachel's newest Dynavox! The previous one was first generation technology and became very frustrating to use. She's very excited to try out the new one and we're excited to hear more of what she has to say. ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry150505-124453 2015-05-05T00:00:00Z 2015-05-05T00:00:00Z
These past couple of years she's had no hospitalizations or anything even close to pneumonia. (Which usually confuses specialists, she's unbelievably healthy.) We're slowly adjusting her seizure meds so she can be more alert during school. The kids in her class love asking Rachel questions and there's a waiting list of who gets to read to her each day.

So, no news is good news. No surgeries or major illnesses - so if I don't update before the ten year anniversary of her accident, it'll be a very good thing.

]]> http://www.rachelnyberg.org/blog/index.php?entry=entry130504-151414 2013-05-04T00:00:00Z 2013-05-04T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry100727-075941 2010-07-27T00:00:00Z 2010-07-27T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry100723-190256 2010-07-24T00:00:00Z 2010-07-24T00:00:00Z
Thanks!]]> http://www.rachelnyberg.org/blog/index.php?entry=entry100722-104207 2010-07-22T00:00:00Z 2010-07-22T00:00:00Z


Each time she didn't want to participate in something (e.g., picture taking) she went to sleep so she ended up wide awake watching her new iCarly movie with a huge smile on her face until late, late, late.
She loved everyone singing Happy Birthday.



Belle cake, funfetti cake (so she'd have polka-dot petticoats) with homemade butter cream frosting.

]]> http://www.rachelnyberg.org/blog/index.php?entry=entry100613-090642 2010-06-13T00:00:00Z 2010-06-13T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry100610-082754 2010-06-10T00:00:00Z 2010-06-10T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry100514-080039 2010-05-14T00:00:00Z 2010-05-14T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry100320-091939 2010-03-20T00:00:00Z 2010-03-20T00:00:00Z ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry100318-152651 2010-03-18T00:00:00Z 2010-03-18T00:00:00Z She was able to use it a little earlier today and was more open to using it when some friends stopped by. She'll have speech therapy on Monday and we'll be able to personalize it even more. We'll be able to put in pages and words that are specific to her. Very exciting! ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry091127-163737 2009-11-27T00:00:00Z 2009-11-27T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry091116-102656 2009-11-16T00:00:00Z 2009-11-16T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry091106-140722 2009-11-06T00:00:00Z 2009-11-06T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry091102-124415 2009-11-02T00:00:00Z 2009-11-02T00:00:00Z
:) ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090921-150635 2009-09-21T00:00:00Z 2009-09-21T00:00:00Z
(We should also be finding out if she's approved for her Eyemax system anywhere from now up until another 4 weeks.)

Update: Luke's been trying to ask Rachel what she wants for her birthday. After blinking "No" for everything he jokingly asked her if she wanted a rock. She blinked "Yes".
"Do you want me to paint it?" he asked.
"No" she blinked.
"So you want a dirty old rock out of the garden for your birthday."
"Yes" she blinked.

Sigh. ;)

]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090610-074739 2009-06-10T00:00:00Z 2009-06-10T00:00:00Z She still seems to be fighting some illness. Once her antibiotics started working with the last illness she was doing great but now she seems to have just a cold but she's been adding a fever to the mix every once in a while just to confuse us.
]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090601-184722 2009-06-01T00:00:00Z 2009-06-01T00:00:00Z I'm also not sure if it's allergies but she's extremely gunky and sneezy even with her allergy med. Last night she spiked a really high temp and barely slept a wink. Not sure what's going on if it's just a bunch of little things all together or if there's something bigger going on but keep her in your prayers today. Thanks!

On a better note, the paperwork for her Dynavox is going to be submitted this week and we'll find out in 6-8 weeks if she gets one. ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090505-085102 2009-05-05T00:00:00Z 2009-05-05T00:00:00Z Then they had circle time and her teacher asked for words that started with an H. Rachel started flipping through through the screens quickly and then found 'helicopter'. Later when she had a seizure she said, "That stinks." We're so excited she's finally able to express herself!

:):):):):):):):)]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090318-153324 2009-03-18T00:00:00Z 2009-03-18T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090315-082648 2009-03-15T00:00:00Z 2009-03-15T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090218-130904 2009-02-18T00:00:00Z 2009-02-18T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090211-062553 2009-02-11T00:00:00Z 2009-02-11T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090209-163355 2009-02-09T00:00:00Z 2009-02-09T00:00:00Z We're still all trying to decide if she can go home or not because she still has to work so hard when she's breathing. I'll try to update soon but so far it looks as if we'll stay another night. Keep her in your prayers. Thanks!]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090209-101450 2009-02-09T00:00:00Z 2009-02-09T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090208-153822 2009-02-08T00:00:00Z 2009-02-08T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090207-194216 2009-02-08T00:00:00Z 2009-02-08T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090128-173023 2009-01-28T00:00:00Z 2009-01-28T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry081225-071909 2008-12-25T00:00:00Z 2008-12-25T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry081129-170844 2008-11-29T00:00:00Z 2008-11-29T00:00:00Z Rachel is still having a great time at school and it now attending Kindergarten for a full day on Thursday. Before she only went for a half day. She really likes the music time.
Halloween at school was fun, Rachel was a princess and when they went 'trick or treating' from room to room instead of candy, they had little things that Rachel could actually use/enjoy like bubbles, sidewalk chalk, little beanie babies, and things like that. It was so thoughtful! ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry081117-165454 2008-11-17T00:00:00Z 2008-11-17T00:00:00Z