2010-03-10T22:43:38Z Sara Copyright 2010, Sara SPHPBLOG She was able to use it a little earlier today and was more open to using it when some friends stopped by. She'll have speech therapy on Monday and we'll be able to personalize it even more. We'll be able to put in pages and words that are specific to her. Very exciting! ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry091127-163737 2009-11-27T00:00:00Z 2009-11-27T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry091116-102656 2009-11-16T00:00:00Z 2009-11-16T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry091106-140722 2009-11-06T00:00:00Z 2009-11-06T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry091102-124415 2009-11-02T00:00:00Z 2009-11-02T00:00:00Z
:) ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090921-150635 2009-09-21T00:00:00Z 2009-09-21T00:00:00Z
(We should also be finding out if she's approved for her Eyemax system anywhere from now up until another 4 weeks.)

Update: Luke's been trying to ask Rachel what she wants for her birthday. After blinking "No" for everything he jokingly asked her if she wanted a rock. She blinked "Yes".
"Do you want me to paint it?" he asked.
"No" she blinked.
"So you want a dirty old rock out of the garden for your birthday."
"Yes" she blinked.

Sigh. ;)

]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090610-074739 2009-06-10T00:00:00Z 2009-06-10T00:00:00Z She still seems to be fighting some illness. Once her antibiotics started working with the last illness she was doing great but now she seems to have just a cold but she's been adding a fever to the mix every once in a while just to confuse us.
]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090601-184722 2009-06-01T00:00:00Z 2009-06-01T00:00:00Z I'm also not sure if it's allergies but she's extremely gunky and sneezy even with her allergy med. Last night she spiked a really high temp and barely slept a wink. Not sure what's going on if it's just a bunch of little things all together or if there's something bigger going on but keep her in your prayers today. Thanks!

On a better note, the paperwork for her Dynavox is going to be submitted this week and we'll find out in 6-8 weeks if she gets one. ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090505-085102 2009-05-05T00:00:00Z 2009-05-05T00:00:00Z Then they had circle time and her teacher asked for words that started with an H. Rachel started flipping through through the screens quickly and then found 'helicopter'. Later when she had a seizure she said, "That stinks." We're so excited she's finally able to express herself!

:):):):):):):):)]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090318-153324 2009-03-18T00:00:00Z 2009-03-18T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090315-082648 2009-03-15T00:00:00Z 2009-03-15T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090218-130904 2009-02-18T00:00:00Z 2009-02-18T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090211-062553 2009-02-11T00:00:00Z 2009-02-11T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090209-163355 2009-02-09T00:00:00Z 2009-02-09T00:00:00Z We're still all trying to decide if she can go home or not because she still has to work so hard when she's breathing. I'll try to update soon but so far it looks as if we'll stay another night. Keep her in your prayers. Thanks!]]> http://www.rachelnyberg.org/blog/index.php?entry=entry090209-101450 2009-02-09T00:00:00Z 2009-02-09T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090208-153822 2009-02-08T00:00:00Z 2009-02-08T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090207-194216 2009-02-08T00:00:00Z 2009-02-08T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry090128-173023 2009-01-28T00:00:00Z 2009-01-28T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry081225-071909 2008-12-25T00:00:00Z 2008-12-25T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry081129-170844 2008-11-29T00:00:00Z 2008-11-29T00:00:00Z Rachel is still having a great time at school and it now attending Kindergarten for a full day on Thursday. Before she only went for a half day. She really likes the music time.
Halloween at school was fun, Rachel was a princess and when they went 'trick or treating' from room to room instead of candy, they had little things that Rachel could actually use/enjoy like bubbles, sidewalk chalk, little beanie babies, and things like that. It was so thoughtful! ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry081117-165454 2008-11-17T00:00:00Z 2008-11-17T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry081018-075754 2008-10-18T00:00:00Z 2008-10-18T00:00:00Z She also had gym class by herself. She thought bowling was okay and she didn't like T-ball at all. Her gym teacher set a mat on top of three scooters and then laid Rachel on the mat. He asked her if she wanted to go around in circles and she said 'no' but she wanted to run! So the gym teacher ran around the gym with Rachel and each time he stopped to ask if she wanted to be pulled around some more she said yes. Finally he stopped and laid down and said he couldn't run anymore, he was too tired. Then Rachel started yelling until he started pulling her around the gym again and then she was all smiles again. ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry081008-193808 2008-10-09T00:00:00Z 2008-10-09T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry080925-101548 2008-09-25T00:00:00Z 2008-09-25T00:00:00Z


]]> http://www.rachelnyberg.org/blog/index.php?entry=entry080917-161159 2008-09-17T00:00:00Z 2008-09-17T00:00:00Z She loved singing with the kids, being on the playground with them and participating during occupational therapy. She got tired and a little fussy at two but then bounced back.

Thanks Dina for sending the note home!

]]> http://www.rachelnyberg.org/blog/index.php?entry=entry080916-191208 2008-09-17T00:00:00Z 2008-09-17T00:00:00Z

I found the cable and here is Rachel in the van ready to go to her first day of kindergarten!]]> http://www.rachelnyberg.org/blog/index.php?entry=entry080914-220415 2008-09-15T00:00:00Z 2008-09-15T00:00:00Z The other day Rachel was in her stander and watching 'Super Reader' on PBS the character on the TV was asking the kids to say 'D' and Rachel kept saying it over again. It's the one letter she can verbally say really well, she'll say "Da da" on purpose all the time. But this time she shortened it to just the letter D. ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry080911-080740 2008-09-11T00:00:00Z 2008-09-11T00:00:00Z Rachel loved school, she was so excited and talking that Wendy had to take off her speaking valve so that the teacher could finish speaking. They had circle time where the kids could ask questions about Rachel and I had already let her teacher know what I usually tell kids and that she's free to answer anything they ask. They helped her to participate in gym class as much as they could and during song time Rachel was very loud again. :) I'll hopefully get a chance to get more details from Wendy soon. ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry080909-072636 2008-09-09T00:00:00Z 2008-09-09T00:00:00Z http://www.rachelnyberg.org/blog/index.php?entry=entry080828-190407 2008-08-29T00:00:00Z 2008-08-29T00:00:00Z Rachel also had her Baclofen pump refilled today and Kaleigh was facinated and quite the little helper. ]]> http://www.rachelnyberg.org/blog/index.php?entry=entry080821-080207 2008-08-21T00:00:00Z 2008-08-21T00:00:00Z