RachelNyberg.org2024-03-19T06:21:06ZSara Copyright 2024, Sara SPHPBLOGTen Year Some brand new great news - last night we just set up Rachel's newest Dynavox! The previous one was first generation technology and became very frustrating to use. She's very excited to try out the new one and we're excited to hear more of what she has to say. ]]>http://www.rachelnyberg.org/blog/index.php?entry=entry150505-1244532015-05-05T00:00:00Z2015-05-05T00:00:00ZEight years tomorrow These past couple of years she's had no hospitalizations or anything even close to pneumonia. (Which usually confuses specialists, she's unbelievably healthy.) We're slowly adjusting her seizure meds so she can be more alert during school. The kids in her class love asking Rachel questions and there's a waiting list of who gets to read to her each day.
So, no news is good news. No surgeries or major illnesses - so if I don't update before the ten year anniversary of her accident, it'll be a very good thing.
]]>http://www.rachelnyberg.org/blog/index.php?entry=entry130504-1514142013-05-04T00:00:00Z2013-05-04T00:00:00ZHome and doing wellhttp://www.rachelnyberg.org/blog/index.php?entry=entry100727-0759412010-07-27T00:00:00Z2010-07-27T00:00:00ZDoing greathttp://www.rachelnyberg.org/blog/index.php?entry=entry100723-1902562010-07-24T00:00:00Z2010-07-24T00:00:00ZSurgery Thanks!]]>http://www.rachelnyberg.org/blog/index.php?entry=entry100722-1042072010-07-22T00:00:00Z2010-07-22T00:00:00ZRachel's Birthday Party
Each time she didn't want to participate in something (e.g., picture taking) she went to sleep so she ended up wide awake watching her new iCarly movie with a huge smile on her face until late, late, late. She loved everyone singing Happy Birthday.
Belle cake, funfetti cake (so she'd have polka-dot petticoats) with homemade butter cream frosting.
]]>http://www.rachelnyberg.org/blog/index.php?entry=entry100613-0906422010-06-13T00:00:00Z2010-06-13T00:00:00ZHappy Birthday!http://www.rachelnyberg.org/blog/index.php?entry=entry100610-0827542010-06-10T00:00:00Z2010-06-10T00:00:00ZMed Update and Surgeries this Summerhttp://www.rachelnyberg.org/blog/index.php?entry=entry100514-0800392010-05-14T00:00:00Z2010-05-14T00:00:00ZNeuro appthttp://www.rachelnyberg.org/blog/index.php?entry=entry100320-0919392010-03-20T00:00:00Z2010-03-20T00:00:00ZCircle Time]]>http://www.rachelnyberg.org/blog/index.php?entry=entry100318-1526512010-03-18T00:00:00Z2010-03-18T00:00:00ZDynavox!She was able to use it a little earlier today and was more open to using it when some friends stopped by. She'll have speech therapy on Monday and we'll be able to personalize it even more. We'll be able to put in pages and words that are specific to her. Very exciting! ]]>http://www.rachelnyberg.org/blog/index.php?entry=entry091127-1637372009-11-27T00:00:00Z2009-11-27T00:00:00ZDynavox in... but in pinkhttp://www.rachelnyberg.org/blog/index.php?entry=entry091116-1026562009-11-16T00:00:00Z2009-11-16T00:00:00ZVaccinationhttp://www.rachelnyberg.org/blog/index.php?entry=entry091106-1407222009-11-06T00:00:00Z2009-11-06T00:00:00ZOnly a couple more weekshttp://www.rachelnyberg.org/blog/index.php?entry=entry091102-1244152009-11-02T00:00:00Z2009-11-02T00:00:00ZApproved! :) ]]>http://www.rachelnyberg.org/blog/index.php?entry=entry090921-1506352009-09-21T00:00:00Z2009-09-21T00:00:00ZHappy Birthday Rachel! (We should also be finding out if she's approved for her Eyemax system anywhere from now up until another 4 weeks.)
Update: Luke's been trying to ask Rachel what she wants for her birthday. After blinking "No" for everything he jokingly asked her if she wanted a rock. She blinked "Yes". "Do you want me to paint it?" he asked. "No" she blinked. "So you want a dirty old rock out of the garden for your birthday." "Yes" she blinked.
Sigh. ;)
]]>http://www.rachelnyberg.org/blog/index.php?entry=entry090610-0747392009-06-10T00:00:00Z2009-06-10T00:00:00ZSummer VacationShe still seems to be fighting some illness. Once her antibiotics started working with the last illness she was doing great but now she seems to have just a cold but she's been adding a fever to the mix every once in a while just to confuse us. ]]>http://www.rachelnyberg.org/blog/index.php?entry=entry090601-1847222009-06-01T00:00:00Z2009-06-01T00:00:00Z4th AnniversaryI'm also not sure if it's allergies but she's extremely gunky and sneezy even with her allergy med. Last night she spiked a really high temp and barely slept a wink. Not sure what's going on if it's just a bunch of little things all together or if there's something bigger going on but keep her in your prayers today. Thanks!
On a better note, the paperwork for her Dynavox is going to be submitted this week and we'll find out in 6-8 weeks if she gets one. ]]>http://www.rachelnyberg.org/blog/index.php?entry=entry090505-0851022009-05-05T00:00:00Z2009-05-05T00:00:00ZDynavox eye gazeThen they had circle time and her teacher asked for words that started with an H. Rachel started flipping through through the screens quickly and then found 'helicopter'. Later when she had a seizure she said, "That stinks." We're so excited she's finally able to express herself!
:):):):):):):):)]]>http://www.rachelnyberg.org/blog/index.php?entry=entry090318-1533242009-03-18T00:00:00Z2009-03-18T00:00:00ZTwo Front Teethhttp://www.rachelnyberg.org/blog/index.php?entry=entry090315-0826482009-03-15T00:00:00Z2009-03-15T00:00:00ZFeeling betterhttp://www.rachelnyberg.org/blog/index.php?entry=entry090218-1309042009-02-18T00:00:00Z2009-02-18T00:00:00ZStarting to get betterhttp://www.rachelnyberg.org/blog/index.php?entry=entry090211-0625532009-02-11T00:00:00Z2009-02-11T00:00:00ZStill sick but at least we're homehttp://www.rachelnyberg.org/blog/index.php?entry=entry090209-1633552009-02-09T00:00:00Z2009-02-09T00:00:00ZHospital StayWe're still all trying to decide if she can go home or not because she still has to work so hard when she's breathing. I'll try to update soon but so far it looks as if we'll stay another night. Keep her in your prayers. Thanks!]]>http://www.rachelnyberg.org/blog/index.php?entry=entry090209-1014502009-02-09T00:00:00Z2009-02-09T00:00:00ZSpamhttp://www.rachelnyberg.org/blog/index.php?entry=entry090208-1538222009-02-08T00:00:00Z2009-02-08T00:00:00ZSickyhttp://www.rachelnyberg.org/blog/index.php?entry=entry090207-1942162009-02-08T00:00:00Z2009-02-08T00:00:00ZRachel's sickhttp://www.rachelnyberg.org/blog/index.php?entry=entry090128-1730232009-01-28T00:00:00Z2009-01-28T00:00:00ZMerry Christmas Everyone!http://www.rachelnyberg.org/blog/index.php?entry=entry081225-0719092008-12-25T00:00:00Z2008-12-25T00:00:00ZEye gaze computerhttp://www.rachelnyberg.org/blog/index.php?entry=entry081129-1708442008-11-29T00:00:00Z2008-11-29T00:00:00ZBusy month!Rachel is still having a great time at school and it now attending Kindergarten for a full day on Thursday. Before she only went for a half day. She really likes the music time. Halloween at school was fun, Rachel was a princess and when they went 'trick or treating' from room to room instead of candy, they had little things that Rachel could actually use/enjoy like bubbles, sidewalk chalk, little beanie babies, and things like that. It was so thoughtful! ]]>http://www.rachelnyberg.org/blog/index.php?entry=entry081117-1654542008-11-17T00:00:00Z2008-11-17T00:00:00Z